City to Surf 2022 – registrations now open

It’s been a long lockdown. Let’s not put those Strava efforts to waste – dust off the runners, and join CRBF on 14 August for the 2022 @city2surf !!

Have a great day completing the 14km course at your own pace, while contributing funds to CRBF Patient Support.

Whilst we are dedicated to finding a cure for sarcoma, we are equally invested in reducing angst for patients and families during their sarcoma journey. We tailor our patient support to suit the individual and whatever their situation calls for. Head to https://www.crbf.org.au/patient-support/ to find out more about this service.

To sign up to for the #city2surf and raise funds for this vitally important service, please head to the link in our bio!

We appreciate this can be a confusing process so if you encounter any issues please don’t hesitate to reach out.

A sad goodbye to a courageous young man

Today, 18 year old Jye Ferrier was farewelled by his loving family and friends at a truly beautiful service on the Gold Coast.

We awoke to the tragic news early last Friday, that this courageous young man loved by all, had lost his life to osteosarcoma, and the sun immediately disappeared behind a cloud.

The courage and determination Jye showed throughout what can only be described as an intensely cruel treatment process, defies words.  Those closest to Jye today remembered the kind, sweet, considerate, selfless young man whose smile, despite his plight in life, continued to light up a room.

Jye always put the needs of others first, despite the pain and sheer angst that came his way during treatment.

Jye made his mark on the world in such a significant way, and he will always be etched in the memory of those whose lives have been deeply touched by his special presence.

Jye’s family Lisa, Dean, Tristan and Byron left Jye in no doubt as to how much he was loved.  It is difficult to imagine a family more cohesive, attentive and supportive. Jye was always wrapped in the pure love of this remarkable family.

Sometimes there are simply no words other than to send our love, strength and our heartfelt condolences to  Lisa, Dean, Tristan, Byron, Jye’s extended family and his very special group of young friends who have spent the past week contemplating life without him.

Forever young…

https://www.instagram.com/p/CdIVqvlrItY/?hl=en

“Swing 4 Sarcoma” Corporate Golf Day

We are very pleased to announce that the Sponsorship and Team packages are now available for Swing4Sarcoma.

Each package is designed so that everyone has a chance to get involved and help raise funds for some much needed Sarcoma research through the @crbfoundation

If you’d like to know more or RSVP to one of the options in the images above, please DM us through our instagram account, and we can get back to you as soon as possible. We are still working out the logistics for the event and will share information once it’s ready.

CRBF is delighted to share this recent instagram post with our network of super keen golfers.

Teams are filling fast, so follow the instructions to secure your spot soon to avoid disappointment.

Spend an idyllic day in the magnificent Southern Highlands only 90 mins from Sydney, with friends, our celebrity golfers, delicious food and beverages, and the opportunity to win great prizes on the day – all while contributing funds to assist those living with a sarcoma diagnosis through our many funding streams.

We extend our sincere thanks to Ed, Patrick, Tim and Simon (all of whom have personal experience with sarcoma) for providing this wonderful opportunity.

Further details below:

Swing-For-Sarcoma

“Feel the Magic ” for bereaved children


CRBF & Feel the Magic

At CRBF we are always looking to partner with like minded organisations whose work  assists our patients and families.  One such organisation is Feel the Magic.  Cooper’s older brother Mitch has been a voluntary mentor at Camp Magic for almost four years whilst studying to become a clinical psychologist.  Suffice to say, he always returns from camps telling us how much he takes away from the experience.

What Feel the Magic do?

Feel the Magic is an Australian charity providing early intervention grief education programs for kids aged 7 to 17.  These children are experiencing pain and isolation due to the death of a parent, guardian, or sibling. Their aim is to create a world where grieving kids and their families feel supported, empowered, and can begin to move forward with their lives.

Why is their work critical?

1 in every 20 children aged 7-17 will experience the death of a parent . In Australia, just over 300,000 children will lose a parent before they reach the age of 18. To put this into perspective, there is most likely a child grieving the loss of a parent in every class at school. In addition to this, children also experience sibling and legal guardian loss. Grieving children who have experienced the death of someone they love can feel isolated and alone. They require ongoing support in developing strategies to cope with and move forward with their lives following a loss.

At Feel the Magic their  evidence-based programs have been developed by a clinical psychologist, and are delivered by trained professionals. Programs follow a structured psycho-educational framework.  This increases confidence and self-respect, teaching practical coping strategies to grieve in a healthy & positive way. Feel the Magic aims to reduce the mental health challenges associated with childhood grief. Bereaved young commonly suffer challenges including anxiety, depression and suicidal ideation.  This contributes to the nearly one quarter of young people in Australia who experience some form of mental health challenge .

How to find out more?

To read more about the outstanding work of Feel the Magic, or to enquire about enrolment, go to https://feelthemagic.org.au/

National Volunteer Week May 16-22, 2022


Volunteers.  The very heartbeat of the Cooper Rice-Brading Foundation.

How do we ever thank you enough for the countless hours you dedicate to the cause?  Your high level skill & expertise? Or  the endless support you provide free of charge to the sarcoma community nationally?

At CRBF we are a 100% voluntarily run organisation.  We continue to be humbled by those who work tirelessly behind the scenes, and who are the very pulse of not for profits like CRBF.

Thank you from the bottom of our heart(s) for brightening the lives of those living with a sarcoma diagnosis.

International Nurses Day 12th May, 2022


How do we ever begin to thank the nursing staff who are the heartbeat of our hospitals?

In particular, as a sarcoma organisation, we would like to highlight the national network of truly remarkable sarcoma nurse consultants and specialist nurses,  who help sarcoma patients daily to navigate the uncertain waters of their diagnosis.

Finally we would like to recognise the outstanding work of our own Keith Cox, OAM, for five decades of nursing, predominantly  as an oncology nurse and nursing practitioner.  To gain a valuable insight into the life of a nurse, Keith’s book is being launched today at Chris O’Brien Lifehouse, and is available through  Pan Macmillan.

“When you’re a nurse, you know that every day you will touch a life or a life will touch yours.” —Unknown

Just look over your shoulder. I’ll be there… Mother’s Day 2022


CRBF Mother’s Day Breakfast Park Hyatt Sydney 2022Just look over your shoulder – I’ll be there. Always….

“Children and mothers never truly part. They’re bound in the beating of each other’s heart.”

Sending our love on Mothers Day to all those who are mums, those who fill the gaps when mum is not there, and those who face the sadness of being separated from their children or their mums.

Remember you are never alone.

The saddest of goodbyes to a courageous young man


Jye Ferrier 23 June 2003 – 29 April 2022Today, 18 year old Jye Ferrier was farewelled by his loving family and friends at a truly beautiful service on the Gold Coast.

We awoke to the tragic news early last Friday, that this courageous young man loved by all, had lost his life to osteosarcoma, and the sun immediately disappeared behind a cloud.

The courage and determination Jye showed throughout what can only be described as an intensely cruel treatment process, defies words.  Those closest to Jye today remembered the kind, sweet, considerate, selfless young man whose smile, despite his plight in life, continued to light up a room.

Jye always put the needs of others first, despite the pain and sheer angst that came his way during treatment.

Jye made his mark on the world in such a significant way, and he will always be etched in the memory of those whose lives have been deeply touched by his special presence.

Jye’s family Lisa, Dean, Tristan and Byron left Jye in no doubt as to how much he was loved.  It is difficult to imagine a family more cohesive, attentive and supportive. Jye was always wrapped in the pure love of this remarkable family.

Sometimes there are simply no words other than to send our love, strength and our heartfelt condolences to  Lisa, Dean, Tristan, Byron, Jye’s extended family and his very special group of young friends who have spent the past week contemplating life without him.

Forever young…

Official opening of the YouCan Centre, Chris O’Brien Lifehouse

A truly memorable event this morning at the unveiling of the  Sony Foundation You Can Centre at Chris O’Brien Lifehouse

This state of the art centre will provide first class apartment style accommodation at no cost for families of the 15-25 year olds (Adolescent Young Adults AYA’s) living with a cancer diagnosis, who are forced to travel to facilitate treatment.

It is estimated upwards of 25% of this group will be sarcoma patients.

The omnipresent and commanding image of Chris O’Brien watched over proceedings which began with the poignant and magnificently chosen words of Gail O’Brien AM, followed by a flawless speech by Sony Foundation CEO, Sophie Ryan; the Premier of NSW Dominic Perrottet and the Hon Brad Hazzard both spoke without hint of an impending election, but instead from the heart; while host Peter Overton, forever the consummate professional, shared his deeply personal connection with this critical project.

The star of the event however was nineteen year old osteosarcoma survivor Elliot Prasad who delivered the heartfelt words that could only come from those who have walked this road. Elliot held the room in the palm of his hand – sharing his experience whilst undergoing treatment at Chris O’Brien Lifehouse and articulating the importance of the You Can Centre to those walking this road behind him.

Our heartiest congratulations to all involved.

An enormous step forward for those young people living with a cancer diagnosis.

Aus Genomic screening and clinical trials $185m

An emotional yet uplifting morning at @garvaninstitute as @angustaylormp together with @greghuntmp (not present due to another commitment), announced a joint funding agreement of $185.4min for the ground-breaking vision of Professor David Thomas and the stellar team at @garvaninstitute to facilitate the Precision Oncology Screening Platform enabling Clinical Trials (PrOSPeCT).

It is difficult not to be emotional when you stop to consider the gravity and breadth of this programme, and what it will mean to those patients living with cancer in Australia, and in particular, rare cancers such as sarcomas.  Sarcoma patients live with the uncertainty of a ‘heterogenous’ cancer (prone to constant change), and genomic screening for genetic mutations, and the discovery of therapeutic matches (personalised therapeutics)  is a critical component of working toward a cure.

Speakers included the Garvan Institute’s Mara-Jean Tilley who managed to do the impossible by putting a very polished press conference together in less than 24 hours, the ever humble Professor David Thomas, The Honourable Angus Taylor MP, Minister for Minister for Industry, Energy and Emissions Reduction, Mr Stuart Knight, General Manager Roche, Dr Tony Penna representing NSW Health, Andrew Hagger CEO, Minderoo, Richard Vines CEO of Rare Cancers Australia and Omico Chair, Paul Jeans.  Each of the speakers spoke with deep passion about the programme, and the inherent difference it would make to those who need it most.

Some of the many aims of this programme are to provide both paediatric and adult patients increased access to genomic screening, (an additional 20,000 patients), repurposed drugs and immunotherapies, to empower Australian clinical trials innovation and capacity building, and to drive pharmaceutical and biotech engagement, establishing Australia as a world leader in this space.

By expanding the current programme to accommodate 20,000 additional patients, will provide untold hope to those who will over the coming months and years, be diagnosed with cancer.

The NSW @nswhealth and Federal Government(s) @healthgovau @industrygovau are to be acknowledged and thanked for their support of this programme, @childrenscancerinstitute for their contribution to the very important paediatric and AYA component, together with
@roche and philanthropic partners @minderoofoundation @rarecancers

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