July is Sarcoma Awareness Month

Sarcoma awareness isn’t limited to a single month or day of the year—it’s something we need to consider 365 days a year.

However, in July, we have an opportunity to bring sarcoma into the spotlight and increase awareness of its sinister nature and the challenges it poses.  A time to direct the spotlight on those impacted by a sarcoma diagnosis—those living with it, their families, carers, survivors, and those forever missed who no longer walk beside us.

This month, CRBF is focusing on our young. Sarcoma affects all ages, but its impact on the young is particularly harsh. Throughout July, we will shed light on the heart-breaking reality faced by young sarcoma patients, driven by alarming mortality rates that show no signs of abating.

Sarcoma, a cancer that can arise anywhere in the body, is often misdiagnosed—especially young people, where symptoms are mistakenly attributed to growing pains, sports injuries, or the anxieties of adolescence.

Joining with us this July will be ten prominent Australians who reflect on their journey from childhood to success in their respective fields, and their immense contributions to Australian society.

What significance do these stories have to sarcoma? They provide a poignant contrast to the experiences of young sarcoma patients who we will also hear from. Far too often, their hopes, dreams, and aspirations are abruptly taken away. Lives changed irreversibly, leaving behind untapped potential.

By listening to these inspiring insights, we hope you’ll take a moment to reflect on the immense losses suffered by our young people diagnosed with this cancer. Loss of childhood, freedom, identity, friendships, time, and tragically, life itself. Sarcoma can alter the story at a crucial stage of physical, emotional, cognitive, and social development, disrupting regular milestones, hindering the dreams of our young.

Together, we can bring hope, support, and a renewed sense of purpose to those impacted.

Let’s rewrite the narrative—don’t let sarcoma end the story.

#SarcomaAwarenessMonth #Notgivingin #Curesarcoma #RewriteTheNarrative

CRBF Mother’s Day Breakfast 2023

As the sun rose over Sydney Harbour, creating the most spectacular sight, the remarkable team at the Park Hyatt Sydney were hard at work setting the tone for another CRBF pre-Mother’s Day breakfast.  The Park Hyatt Sydney has supported the work of CRBF for many years, and we remain so very grateful to Christine Haddad, Mary-Ann Gichaga for overseeing yet another flawless event.

Floral arrangements generously supplied by The Lynch family, and The Little Fresh Group, crowned the superbly styled tables with cream roses and carefully chosen greenery crafted into bouquets in tall glass vases.

Bottles of Taylors sparkling wine lined marble plinths, and together with sage and lavender candles from Glasshouse, and chocolates from Lindt, formed the beautiful take home gift bags for our guests.

Cooper’s Sydney Grammar School friends, the incredible Jarrad Sapsford and Marc Chami  provided their very special brand of musical performances as the guests arrived, for the fifth year of this event.  I doubt we can ever thank these outstanding young men enough for doing what they do year after year, despite moving on with the fabulous lives that await them.

Melissa Hoyer was MC once more, and how fortunate are we that she was?  Melissa has put her hand up for several years now, to help us out in arguably one of the most pivotal roles of this event.  She is as professional as she is genuine – a rare commodity.  As an aside, it is always the sign of a consummate professional who can step up to the challenge despite the absence of their notes (in no way her doing).  We thank you from the bottom of our hearts Melissa for all you do for sarcoma in Australia.

Gretel Killeen, is a force of nature, and someone we regard very highly at CRBF.  Once more, we were so fortunate her intense professional schedule enabled us to have her take the stage with pre eminent immigration law specialist the truly inspiring Carina Ford whose body of work with challenging immigration cases speaks for itself.  Carina and Gretel spoke to our guests about a current case  she is handling for a young sarcoma family.  This case is emblematic of the special needs our patients and families face daily.  It also impresses the fact that there are layers of the unexpected in a sarcoma diagnosis.  We are deeply indebted to both Gretel and Carina for this beautifully structured, and extremely informative segment.

CRBF’s Mitchell Rice-Brading proved his adaptability by stepping up to cohost, and to bring levity to an otherwise very serious topic, in several roles throughout the morning.  This was despite seriously compromising his inheritance by his very humorous but deeply unfounded recounts of his and his little brother’s upbringing in front of a television watching The Bold and the Beautiful reruns with his mother…  Mitch is an integral part of our community at CRBF, and is proving repeatedly that psychology may not be his only calling.

Scientific power couple, Professor(s) David Thomas and Mandy Ballinger joined Mitch Rice-Brading for a “fireside chat” about the IL23 clinical trial preliminary results, and the remarkable findings from the ISKS (International Sarcoma Kindred Study).  They also spoke of the imminent hope for the future surrounding sarcoma proving once and for all, the dial is finally moving.  The Foundation’s association with Prof Thomas and Prof Ballinger spans back to when Cooper was treated by Prof Thomas in 2017.  Cooper went on record to articulate his confidence and appreciation in not only their work, but the great sense of empathy and humanity both Mandy and David display to those who cross their paths.

The entertainment for the morning was provided by the exceptional Carly-Ann Evans and the extraordinary Daniel Tambasco.  You could hear a pin drop when they performed.  The recitals of The Prayer, and Ave Maria, simply defied words.  Both performances were flawless and added dimensions to the event that cannot be adequately described. Please contact CRBF should you wish to engage the services of this highly professional and uber-talented duo, who selflessly lent their time and passion to this event.

This year, we highlighted an outstanding group of contributors who together have amassed over $600,000 over the past six months for sarcoma services in Australia.  GWS netball star Amy Parmenter and crowd favourite Molly Croft led the interview, outlining the remarkable work of The Tie Dye Project in raising $130,000 in a matter of months, and speaking as to why they do what they do – paying homage to not only Molly who is an osteosarcoma survivor, but also Amy’s mum Gillie who passed away in 2013.

We then heard from Rebecca Minty and her mother Mary Lou who redefine the word inspiring.  Rebecca lost her precious son Zac to sarcoma in May of 2022, is facing her first Mother’s Day without her son.  She and her family have created a lasting legacy to Zac with “Bricks and Smiles” which has been created in his memory.  It is a programme to provide Lego to all children undergoing treatment.  A significant portion of the $38,000 amassed was raised by Mary Lou with bi weekly cake stalls. Suffice to say this story warmed the hearts of all in the room.

The microphone was then handed to Patrick Nekkan from Swing for Sarcoma who recently lost his beautiful mum to sarcoma, and saw his best friend Ed Clark diagnosed with this cancer also.  Swing for sarcoma, including Tim Telan and Dr Simon Danieletto is an outstanding team of young men all with an unusual connection to sarcoma, who have raised extraordinary funding and plan to do it all again in November of 2023.  We are without words to thank them for their amazing contribution.

Next up were the team from Macquarie Bank.  Mark Yam, a dear friend of Cooper’s from his Sydney Grammar School days, headed the discussion, and joined by Maddie Waites – although it could have been Georgia as they are twins.  This trio assisted by Emma Pechan formed the committee for the Macquarie Bank trivia night, which was predicted to raise a very respectable $8000 yet the final figure was $173,000!  We thank this team of exceptionally passionate young individuals, together with Deputy Managing Director of the Macquarie Group, Greg Ward – a man with a deep personal connection to Cooper, for their immense support of this event.

Finally we heard from the boys from Poor Man’s Everest – the brainchild of the most incredible trio of young men, Lachie Mactier, Angus Joyce and Hunter Hordern.  This fundraiser was in honour of Jack Gibson, who was to also compete with the boys in the Noosa Triathlon.  Against the most unimaginable of odds, the Poor Man’s Everest team together with their magnificent support group of Jack’s close friends, Will Gyles, Emma Duncan, Hugh Jamieson, Shiv Shaw, Tom Molloy and Dylan Boakes competed in this gruelling event raising the outstanding amount for the Jack Gibson Patient and Family Support Programme.  It is important to point out Lachie ran a half marathon earlier in the year to add gravity to this fantastic fundraiser.

Finally, we heard from Suzie Carlon.  Suzie is Jack Gibson’s mother, and yesterday, faced her first Mother’s Day without Jack.  Suzie chose to focus on acknowledging those mothers who make the world a special place for those (mainly children) who are living with sarcoma. Suzie’s beautifully chosen words resonated deeply with all present in the room – not only those who personally recognise the pain she lives with daily.  Suzie’s words embodied courage and deep seated resilience. Despite the fact her heart is broken in a thousand pieces, her words comforted so many.  She reminded us all – we are never alone. We are each united by the unspeakable road we travel.  Suzie went on to read Jack’s extraordinary speech from December 2021, where he spoke of “hope”.  This speech was a moment that will always remain suspended in time to those fortunate enough to be present, and Suzie’s courage in delivering this speech once more, was a moment that every guest in the room yesterday, will never forget.

So with another Mother’s Day Breakfast done and dusted, we must finish by recognising those who make these events possible – our sponsors.

For the past five years, many of the following have supported sarcoma services in Australia, and we would ask in return, our community considering supporting them for their loyalty.

The Autore family and Autore Pearls

Ange Cattana, Justin Taylor, the Taylor family and Taylors Wines

Dr Warwick Nettle and Ms Nicole Eckels – Glasshouse Fragrances

The Lynch family, and The Little Fresh Group

The Somerton Group and the Dreverman family

Lindt Chocolates

Park Hyatt Sydney

Bells of Killcare

The Magiros Family and The Macleay Group

Phillip Fikkers and Macleay St Bistro

Zinc Restaurant Potts Point

Bistro Rex

The Butler, Potts Point

The Potts Point Bookshop


Finally, we could not do what we do without you, our loyal supporters.  It truly takes a village….


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Double Donation April – June 2023

CRBF is thrilled to announce that for the months of April, May and June of 2023, all donations for sarcoma research made through CRBF, will be doubled, up to a staggering $200,000. 100% of funds will then be directed to an exciting & innovative sarcoma research programme to be announced very soon.
That’s right, every dollar you donate will be matched by a profoundly generous private donor, effectively doubling the impact of your contribution.
Sarcoma currently attracts less than 1% of government funding, and it is philanthropy that continues to ensure the dial is moving.

Every donation, large or small, can make a difference in the lives of those living with sarcoma. With this matching opportunity, your gift will go twice as far in helping CRBF achieve our mission.

Whether you’re a longtime supporter or just learning about our organisation, we invite you to join us in this exciting opportunity, and together we can help make the future brighter for those diagnosed with sarcoma.

IT for a Cause Charity Golf Day

IT for a Cause golf day raises $105,000…

A picture perfect day at the magnificently manicured course @StMichaelsgolf set the scene for the IT for a Cause annual golf day.

The CRBF team comprised of world leading paediatric transplant surgeon Professor Albert Shun, his colleague leading Australian paediatric oncologist and sarcoma specialist, Prof Geoff McCowage, a young man who is dear to CRBF hearts, Coops friend and NSW cricketer @Baxter_ Holt together CRBF Company Secretary, Colin Brading . Golf was however the winner on the day…

Outstanding leadership from David Abouhaidar, Jody King, Alana Hogan and the team at @SecureAgility who oversaw a huge undertaking for three very fortunate charities: @SaveOurSons Duchenne Foundation, @RMC_ Sydney and the Cooper Rice-Brading Foundation .

Our most sincere thanks go to the David, Jody, Alana and the Secure Agility team for this incredible opportunity. Thank you must also go to all sponsors, attendees and Simone, Jamie and the team from RMHC, and Ellie, Julie and the team from Save our Sons Duchenne Foundation.

Your support will make a profound difference to our work at CRBF with 100% of donations directed to patient support and high level research into sarcoma.

CRBF Support Kits for those living with sarcoma

When you are diagnosed with sarcoma, your world changes in the blink of an eye.  Life is suddenly filled with extreme angst and the unknown.

Our Patient Support Advocate, the late Jack Gibson knew this feeling all too well, and it was Jack who spent hours of his time thinking about those things that made a difference throughout his treatment.

With the exception of the rug he loved to take with him during his visits to hospital,(which we are yet to source) we have put together kits that reflect comfort, a little luxury and practicality.  Kits that provide momentary joy to those living with a sarcoma diagnosis.

Woolen beanies, lip balm by moogoo,  skin products crafted for those going through cancer treatment from Scout Cosmetics, exquisite product from Glasshouse Fragrances,  silk eye masks and sleepwear from Peter Alexander Sleepwear, The Tie Dye Project long and short sleeve apparel, silk/ satin pillow covers, are provided in the standard kit .

Kits are tailored to the needs of each patient, and we cater for all ages and gender.

We can only do this because of the exceptional generosity of the partners we have in place for this very important project.  Their participation and willingness to support our work has enabled this programme to expand exponentially over the past five years.

Suffice to say, this would not be possible without their support.

A life that once was, the love that always will be

22 January, 1999 – 24 August, 2017

The life that once was, and the love that will always be.

Always and forever…

Our family extends our heartfelt thanks to Professor Glenn Marshall AM, talented  artist, and eminent paediatric oncologist at the Children’s Hospital Randwick,  Director of the Kids Cancer Alliance, and Head of Molecular Carcinogenic Program and Translational Research at the CCIS for capturing Cooper as he would wish to be remembered on his 24th birthday.

This magnificent painting which forms part of Prof Marshalls series  “boy to man…” portrays Cooper as an 11 year old captaining the SEJCA representative cricket side, and in the foreground as a 16 year old playing T20 for the Sydney Grammar 1st X1 shortly before his sarcoma diagnosis. (Original photos attached)

A very sad goodbye to Jordan Stockman

It is with the heaviest of hearts that we share the passing of yet another very special young man – Jordan Stockman.

Jordan was diagnosed with metastatic Ewing sarcoma days after his 25th birthday in August of 2021, and staged a very courageous and public battle, using his sizeable social media following to raise awareness of sarcoma, despite the great personal adversity he lived daily.  He was determined to use whatever he had at his disposal to move the dial, and to ensure others his age understood the sinister nature of sarcoma in an effort to promote early diagnosis.

When meeting Jordan face to face he was surprisingly different from his social media persona. He was a gently spoken and considered young man, and his notoriety in the fashion world, and on TiK Tok failed to change his grace and humility, and in particular, the undeniable love he had for his family.

Jordan was one of six children to doting parents, Ahuaiti and Darrin Stockman.  You  could walk the earth, and never find a more loving, and more genuinely cohesive family.

In an unimaginable and deeply cruel twist of fate, Jordan lost his beloved mum to pancreatic cancer only eight short weeks ago.

Jordan’s story is a strong reminder of so much.  The fragility of life, the inequity of tragedy, the importance of making each moment count, but most of all, how love and family prevails over all.

We send our love and strength to Darrin, Corey, Jovan, Cullen, Kaelis and little sister Kye-Jana.

Rest in peace Jordan. You will always be one in a million.

If you would like to provide financial assistance to Jordan’s family you can go to link in Bio, or for an offer of practical assistance, please contact Tania Rice-Brading via DM on our socials or email taniarb@crbf.org.au.  Tributes may be left on our social media, which will be collated and sent to the family.

Macquarie Bank supports sarcoma research

There is no better way to see 2022 out, than providing hope for the future to all those living with a sarcoma diagnosis.

We are honoured to announce CRBF was the nominated charity for the annual Macquarie Group Banking and Financial Services (BFS) Trivia Night. This is a staff event organised by volunteers within BFS to support philanthropic causes.

The event commenced with a CRBF sarcoma awareness video containing snippets of the speech Cooper Rice-Brading delivered to 250 guests at the launch of CRBF in March of 2017, using the platform to highlight the insidious nature of the disease, together with the severe lack of awareness in the community, and the dire lack of funding sarcoma receives.

Through the event, Macquarie staff raised over $173,000 for CRBF, a truly remarkable effort which will contribute to sarcoma specific clinical research and patient support in Australia. This will be allocated to two very exciting high level projects to commence in early 2023.

Our thanks cannot be adequately articulated to all of the Macquarie BFS staff who participated and their immense generosity.  This event would not have been possible without the organisational skills of the Macquarie BFS volunteers who organised the event in support of CRBF. Special thanks must go to Cooper’s school friend Mark Yam, together with Avantika Pratap, Georgia and Maddie Waites who worked diligently behind the scenes to ensure the resounding success of the event.

As the sun sets on 2022, we take this opportunity to wish each of our supporters the promise of hope, good health and happiness in 2023.  The work we do for those living with a sarcoma diagnosis would not be possible without your ongoing support and generosity.

Festive Season greetings 2023

May all that is beautiful, meaningful, and brings you joy, be yours this Christmas Day as you celebrate with those closest to your heart.

This year has been one of unimaginable loss but with it, unimaginable gratitude and love. Thank you so much for being there.

As always at this time of the year remembering those who may be facing great personal challenges and immeasurable loss.  You are never alone.

Thanks once again to the CRBF Christmas Bulldog Betty!

Swing For Sarcoma Inaugural Golf Day

On November 17, four remarkable young men, each with a strong personal connection to sarcoma, hosted the Swing for Sarcoma corporate golf day.

Ed Clark, Tim Telan, Patrick (Pat) Nekkan and Simon Danieletto are lifelong friends, and young professionals, who now have partners and young families, yet despite their personal and professional commitments, put their heart and soul, together with countless hours into ensuring the success of this event.   Our gratitude to Ed, Tim, Pat and SImon together with their partners, is difficult to articulate.

The work that goes into an event of this magnitude is immense, yet somehow this outstanding group of young men managed to produce a day which will be etched in the memory of those attending for many years to come.

The day was picture perfect, the event flawless, the Mt Broughton Golf Course simply superb, and those participating were outstanding.

Despite the fact there was no collusion with the final tally, the eventual winners of the inaugural Swing for Sarcoma cup were Pontoon Bar Darling Harbour team led by owner Mark Swadling, who has loyally supported CRBF and our work with sarcoma from the day we set out to instigate change.

This event would not be possible without the generosity of sponsors, far too numerous to mention,  each appearing in the attached video.  If you have the opportunity to support these generous individuals and donors, we ask that you do.

A very special mention to the fabulous Adrienne and Peter Glass and to the big-hearted Craig Hodges for their immense generosity in donating luxury stays at their respective holiday homes as auction prizes, which do not appear in the programme.

Photo credits to Pip Danieletto