Helpful Links

There are a number of resources available Australia-wide for sarcoma patients.

Australian & New Zealand Sarcoma Association

The Australia New Zealand Sarcoma Association, formerly known as the Australasian  Sarcoma Study Group were formed over a decade ago, by clinicians and surgeons with shared interests in sarcoma and research, and establishing itself in 2008 as the Australasian Sarcoma Study Group.  ANZSA is one of thirteen Multi-site Collaborative National Cancer Clinical Trials Groups,  established to help reduce the impact of cancer in the community.  This is achieved through the facilitation of coordination and collaboration between all stakeholders, including people affected through cancer, health professionals, researchers, cancer organisations and governments.

“The aim of ANZSA is to improve outcomes for sarcoma and related tumours in the Australian community by undertaking outstanding international basic, translational, clinical and supportive care research. ANZSA provides the infrastructure for collaboration between multi-disciplinary teams (MDT), which comprise specialist health professionals who work together to discuss cases and how to best manage treatment and care.

https://sarcoma.org.au/

Phone – 131450

 

Find a sarcoma specialist – CRBF

Sarcoma must be treated by a specialised team.  Click on the link below to be directed to contact numbers and details for sarcoma specialist teams Australia wide:

https://www.crbf.org.au/sarcoma-multi-disciplinary-teams/

Rare Cancers Australia

“Rare Cancers Australia Ltd (RCA) is a charity whose purpose is to improve the lives and health outcomes of Australians living with rare and less common (RLC) cancers.

In Australia in 2017, an estimated 52,000 people were diagnosed with RLC cancers, and 25,000 died from them, according to Cancer in Australia 2017 estimates.

As distinct from common cancers (breast, prostate, bowel, lung and melanoma) there is very little patient support offered to RLC cancer patients. RCA works tirelessly to ensure that this cancer group will never be forgotten or ignored again.”   (RCA website 2020)

Phone – 1800 257 600

https://www.rarecancers.org.au/

Australian New Zealand Clinical Trials Registry

The Australian New Zealand Clinical Trials Registry (ANZCTR) is an online register of clinical trials being undertaken in Australia, New Zealand and elsewhere. The ANZCTR includes trials from the full spectrum of therapeutic areas of pharmaceuticals, surgical procedures, preventive measures, lifestyle, devices, treatment and rehabilitation strategies and complementary therapies.

Phone –  61 2 9562 5333

http://www.anzctr.org.au

Victorian Cancer Trials

The Victorian Cancer Trials Link (VCTL) website enables you to search for all available cancer clinical trials in Victoria.

Phone – 13 11 20

http://trials.cancervic.org.au/

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WHO International Cancer Trials Registry Platform

The mission of the WHO International Clinical Trials Registry Platform is to ensure that a complete view of research is accessible to all those involved in health care decision making. ‘

http://www.who.int/ictrp/en/

 

European Organisation for Research and Treatment of Cancer

As an independent, non-profit cancer research organisation, the EORTC mission is to coordinate and conduct international translational and clinical research to improve the standard of cancer treatment for patients.

EORTC aim ultimately to increase people’s survival and quality of life by testing new therapeutic strategies based on existing drugs, surgery and radiotherapy. We also help develop new drugs and approaches in partnership with the pharmaceutical industry and in patients’ best interests.

Phone – (02) 8063 4100

http://www.eortc.org/

Sarcoma Alliance for Research through Collaboration SARC

SARC (Sarcoma Alliance for Research through Collaboration) is a non-profit organisation dedicated to the development and support of research for the prevention, treatment, and cure of  sarcomas.  SARC assist multi-institutional sarcoma research happen, with the aim of  being a catalyst for translational research, and ensuring that bench-to-bedside studies are translated to treatments or therapies for medical practice. SARC also foster collaboration between investigators and industry to promote the development of preclinical and clinical research concepts.

https://sarctrials.org/

Cancer Australia

‘National cancer control requires partnership and coordination across sectors and groups to harness and leverage collaboration agreements and reduce duplication. This Cancer Australia Strategic Plan 2014 0-2019 brings together the shared views and considered input of our stakeholders gleaned through an extensive consultation process.’

https://canceraustralia.gov.au/

Clinical Oncological Society of Australia

COSA consists of over 1,000 individual members who are doctors, nurses, allied health professionals and scientists working in cancer care throughout Australia.

https://www.cosa.org.au/

Cancer Council New South Wales – Bone Cancer information

Understanding primary bone cancer.

Phone- 13 11 20

https://www.cancer.org.au/health-professionals/clinical-practice-guidelines/sarcoma

MIB Agents

MIB Agents Is A Leading Paediatric Osteosarcoma Nonprofit Dedicated To Making It Better For Our Community Of Patients, Caregivers, Doctors, And Researchers Through Programs, Education, And Research.

https://www.mibagents.org/

Canteen

“Canteen is there for you if you are aged 12-25 and cancer has turned your world upside down”.

Phone – 131450 (24 hours)

https://www.canteen.org.au/

Lifeline

Lifeline is a national charity providing all Australians experiencing a personal crisis with access to 24 hour crisis support and suicide prevention services.  Lifeline is committed to empowering Australians to be suicide-safe through connection, compassion and hope.  The Lifeline vision is for an Australia free of suicide

Phone – 131114 (24 hours)

Kids Helpline

Kids Helpline is Australia’s only free, private and confidential 24/7 phone and online counselling service for young people aged 5 – 25

Phone – 1800 551800

https://kidshelpline.com.au/teens

Translation Service

The Translating and Interpreting Service (TIS National) is an interpreting service provided by the Department of Home Affairs for people who do not speak English and for agencies and businesses that need to communicate with their non-English speaking clients.

Phone – 131450 (24 hours)

https://www.tisnational.gov.au/

Redkite

Redkite is an Australian cancer charity providing essential support to children and young people (0–17 years) with cancer, and the family and support network who care for them.

Telephone: – 1800 733 548

http://www.redkite.org.au

Chris O’Brien Lifehouse

Chris O’Brien Lifehouse is the specialist sarcoma chemotherapy and day therapy treatment centre for New South Wales, concentrating experts in a centre of sarcoma expertise.

Telephone: 1300 852 500

http://www.mylifehouse.org.au/departments/sarcoma-specialist-treatment-centre/