International Childhood Cancer Day 2024

International Childhood Cancer Day (ICCD) 2024Awareness around childhood cancer is never limited to one day, however on this day each year, we pause to recognise the needs and challenges of young cancer patients & survivors worldwide.  It is also a day where we honour the cherished memories of those whose lives have been lost.  

Approx 40,000 children/adolescents worldwide are diagnosed with cancer each year, & 1000 of these are Australian.  Concerningly, three of these children will lose their lives weekly to cancer.   Despite significant advancements in medical research & treatment options, young cancer patients still face immense challenges & the impact extends far beyond those diagnosed.

ICCD serves as a poignant reminder of the urgency required to address unique challenges faced by children with cancer; a celebration of progress made in paediatric oncology; & renewed commitment to equitable access to quality care & support for all children affected by cancer.   This day also recognises & highlights those who through unimaginable adversity, continue to make a profound difference in the lives of others.   

One such family, is that of Zac Minty diagnosed with rhabdomyosarcoma at the age of eight – they are a shining example of resilience, courage, & strength, much like Zac himself.  

Bricks & Smiles: the Zac Minty Legacy Project, was established by this remarkable family in honour Zac, who passed away aged 11.    LEGO was important to Zac whilst undergoing treatment as it provided “a pastime, a rehab tool, a challenge, and an escape.” Despite his very young age, he aimed to support other kids going through cancer treatment by providing the opportunity to pick out their dream LEGO sets. He also wanted to help find a cure for cancer.  

Bricks & Smiles directs fund to:   Providing kids undergoing oncology treatment a $400 grant to pick out their dream LEGO set(s); Australian paediatric/AYA sarcoma research (including clinical trials)  

In honour of Zak & in recognition of the outstanding work undertaken by his family to ease the burden on other children, CRBF will double all donations made to Bricks and Smiles (up to $2000) To donate or read more go to the link in our bio

In Zac’s family’s words:

“Zac was 8 when he was diagnosed with Rhabdomyosarcoma in the orbit of his left eye. He bravely fought for almost 3 years, passing away in 2022, just after turning 11. He was in year 6 at the time. 

Zac was an aspiring soccer goal keeper, a mad Liverpool FC fan and a kind, generous, thoughtful kid – a beautiful soul. He gave so much to us, he had so much more to give – but sarcoma took that away.  He stoically battled through some incredibly harrowing treatment, always putting on a brave face and anxious to look out for those caring for him. 

 Our family set up Bricks & Smiles in Zac’s name. He loved doing LEGO through his treatment, it was an escape and an opportunity to feel in control in a world where so much was out of his control due to cancer. He would do LEGO on the hospital ward, at Ronald McDonald House, or at home – there was always something on the go. With Bricks & Smiles, kids undergoing oncology treatment can apply for a grant to pick out their dream LEGO sets. They can build them where and when they like. 

It brought Zac joy to create, and it’s bringing other kids joy as they fight so hard against this cruel disease.  Bricks & Smiles has also been able to make a contribution to sarcoma research and will continue to do so – we must all work together towards a cure for sarcoma and other cancers. No less.  

Zac’s grandma Mary-Lou holds a cake stall every two weeks to raise money, zac’s mum and friends had their community sponsor their City to Surf run, Zac’s dad does the Bricks & Smiles website and his brother Elliott brought the school onboard to do SRC do fundraisers. Through all these little bits and pieces we stand up to cancer in Zac’s name. Granting the LEGO is us standing with other kids going through hard treatment. Bricks & Smiles also support the incredible work of researchers looking for a cure. 

On Zac’s birthday his family will gather together at Ronald McDonald House to sponsor and prepare a ‘Meal from the Heart’ in Zac’s name. This is a great initiative that community and corporate groups can support families staying at the house by cooking and serving a meal for them. Zac and family spent almost 270 nights at RMDH through his treatment and his family benefited from so many Meals from the Heart. Even when Zac wasn’t able to eat much he loved the Meals from the Heart nights, as it made everyone’s life easier. It made us all feel nourished as well as full. 

International Childhood Cancer Day is a day to support the children and adolescents that are battling cancer and their families, carers and communities. It is a day to support the amazing work of clinicians, medical and allied health staff, and medical researchers. It’s a day to commit to keep fighting this fight until we have a cure for childhood cancer. “

We urge you to support this outstanding initiative by going to www.bricksandsmiles.org

Gibbo’s Long Lunch to aid the JGSP&FP

Under a radiant sun and against a backdrop of lush emerald-green paddocks embracing the sparkling Manning River, Mansfield on the Manning became the canvas for a five-hour lunch experience like no other on Saturday, November 11th.

Hosted by the Gibson family, 220 invited guests gathered for a very special event.  “Gibbo’s Long Lunch” was held in memory of a remarkable young man.  A much loved son and brother, Jack Gibson. The event also served as a testament to Jack’s memory, legacy, and support for the Jack Gibson Sarcoma Patient & Family Support Programme (JGSP&FSP). On the eve of what would have been Jack’s 27th birthday, love filled the air, transcending into tangible moments shared amongst attendees.

Suzie, Jack’s mums’ poignant opening speech echoed the sentiment that “Jack brought people together,” setting the tone for a day where cherished memories were exchanged and new bonds were formed. The event surpassed expectations by raising an impressive initial figure of $250k,(and rising) a testament to the enduring impact of Jack’s story.

The Master of Ceremonies for the day was long-standing CRBF ambassador, co-host of the highly successful Fitzy, Wippa & Kate Breakfast Show on Nova FM radio, and Australian media personality, Michael “Wippa” Wipfli, who never disappoints with his unique brand of sincerity, warmth, professionalism & humour.  On the day Wippa managed to not only MC the event, but to slip out between sets, to secure two highly coveted Taylor Swift tickets on the day for auction.   These are concert tickets that sold out in less than 40 minutes of being released, and simply cannot be found, much less purchased.

Words cannot articulate our heartfelt thanks to Wippa for his monumental effort on Saturday in memory of Jack, and for the incredible work he has done for many years providing untold hope to those living with sarcoma. 

Suzie’s moving speech preceded a heartfelt video tribute covering Jack’s 26 years, evoking laughter amidst tears and encapsulating Jack’s essence.

Brother Harry and sister Lily, were simply flawless, as they took us on an emotional roller coaster, recounting so many precious, and often very funny memories of their big brother, while Neil, the patriarch of the family, delivered an impassioned speech impressing the importance of Jack’s Programme, and what it will mean to others walking this road behind him.

Mitchell Rice-Brading, CRBF’s patient support co-ordinator, spoke from the heart covering the evolution of JGSP&FSP, and Jack’s pivotal role in its formative phase, adding a stirring quote from nurse, veteran and sarcoma patient, Kaela Graham-Bowman who generously shared her raw and unfiltered thoughts on what it is really like to live with sarcoma.

Jack’s dear friend, Vince Umbers delivered a stirring and deeply moving musical tribute to Jack, as he did one year prior in the very same setting.  The lyrics of this magnificent song resonated deeply.

Angus Joyce superbly hosted a Jack-centric trivia, and Henry Clarke of Sydney University Cricket Club provided extremely entertaining insights into Jack’s cricketing prowess. Hunter Hordern and Lachie Mactier hosted a lively hole-in-one competition, encouraging the competitive golfing spirit in the room. Alex Grant and Harry Gibson rallied the troops for the races, and bidding was fierce.

Behind the scenes, Suzie, Neil, Harry, and Lily, alongside Anna and Geoff , Georgia,  Emma, Will, Kimberly , Tom, Amelia, Sally, Peter, Sandy, Stu, Cath, Nicky, Jen, Kim Alex, Meg, Rob, Shiv, Lachie and Lindy played instrumental roles from arranging flowers to photography, food prep, video production, catering, and everything in between.

Auction and raffle items for the event were premium offerings, ranging from 18 holes of golf for four at NSW Golf Club with Australian Cricket Captain, Pat Cummins, who generously supported this event.  The Racklyeft family donated 2 weeks at their ski lodge in Big White, British Columbia.  A superb Noosa package was donated by the Hordern and Marlow families; A Potts Point Experience, a luxury pamper package, a weekend at Manning on the Mansfield for 18, and an exquisite Prada handbag donated by Prada Executive Sophie Clark, which found a home with the very popular Sally Mactier.

Special thanks must go to Chrissy Hordern and Siobhan (Shiv) Shaw – Chrissy for her outstanding work in securing the best array of prizes and auction items seen at a charity event in a long time.  Shiv spent countless hours producing flawless work to market the items. Together Chrissy and Shiv made a very significant $100k contribution to the impressive fundraising total. 

Thanks must also go to Emma Duncan for her great work with the mammoth task of AV/IT, and Tom Molloy for capturing the essence of the day with his beautiful photography.

Finally events such as this one are not possible without the profound generosity of donors.                                                 

Avondale Golf ClubRock Salt Noosa
Camperdown Cellars Ross Hill Wines, Orange
Champion Sports (Bushnell) Scarborough Wine Co
China DinerSony Pictures Releasing
Cricket AustraliaSun Mountain Sports
Glasshouse Fragrances Teed up Golf
Hotel Challis Potts PointThe Chapman Family, Palm Beach
Hugo’s Manly The Dinner Ladies
Human Nurture Rose BayThe Dreverman Family, Bowral
Joh Bailey Salon The Holden Family, Blueys Beach
Locale Restaurant & Bar NoosaThe Hordern Family, Noosa
Macleay on Manning, Potts PointThe Marlow Family, Noosa
Macleay St Bistro, Potts PointThe Purbrick Family
Michael Smythe PGAThe Racklyeft Family, Big White
Prada Australia – Sophie ClarkThe Rice-Brading Family
Potts Point BookshopThe Vintage, Hunter Valley
Ricky’s River Bar and Restaurant Noosa

In celebrating Jack’s life, the “Gibbo’s Long Lunch” became a tapestry of shared experiences, a testament to the enduring impact of a young man who brought people together and left an indelible mark on the hearts of all who knew him.

Let’s all raise our glasses to the very essence of Jack and his remarkable family….

Sarcoma Summit Sydney 2023


2023 Sarcoma Summit

22 September

Kerry Packer Theatre RPA, Sydney. 

A day emblematic of hope for the future.

The virtual & in person audience comprised of those living with sarcoma, families, bereaved family & carers, clinicians, researchers, local & fed government, allied health professionals & everyone in between. The event provided a platform for each to be heard, & to share more about this insidious cancer.

The idea was that of CEO, Sydney Local Health District, Dr Teresa Anderson AM, and her stellar team led by Chief of Staff, Hannah Storey, & marked the first step forward in moving the dial for sarcoma  in NSW, & nationally.

The MC for the event was veteran media presenter & cancer advocate, Julie McCrossin OAM, whose execution was flawless.  Julie was entertaining & brought much needed humour to an otherwise very dark topic by her unpredictability, & the ability to think on her feet.  It was a tough job, & it was done to perfection.

An outstanding line-up of presenters covered an immense body of topics & gave inspiring & highly informative presentations.

However, it was those who live the devastation of sarcoma who ultimately made the greatest impact.  It is an unspeakably tough job to relive that passage of life irreversibly changed by sarcoma, however these brave, articulate individuals provided raw & honest accounts of their individual experiences.

We extend our heartfelt gratitude to the attendees, many of whom travelled significant distances to be there, & many of whom are at differing stages in the sarcoma timeline.

Clinicians/researchers/allied health professionals took time out of their schedules to support the event & to come together with other members of this small, but powerful community.

Our infinite thanks goes to the panellists & speakers – Dr Teresa Anderson AM, Uncle Allen Madden, Julie McCrossin OAM, Drs Richard Boyle, Dan Franks, & Maurice Guzman, Neil Gibson, Rebecca Minty, Louise Hird, A/Profs Antoinette Anazodo OAM, Peter Grimison, & Wayne Nicholls, Emma Pechey, Neema Rajak, Kaela Graham-Bowman, Karen & Imogen Atkins, Mandy Basson, Emma Pechey, James Parr, A/Prof Rooshdiya Karim, Dr’s Emily Davidson, Isobelle Smith, & Aneesh Dave.

2023 Sarcoma Summit A4 Booklet Digital

Childhood Cancer Awareness Month

On this day six years ago, our family and friends said our final gut-wrenching goodbyes to Cooper at his funeral service. 

It was the first day of spring, a day of rebirth, renewal and hope. 

What we didn’t know at that time was that September 1, also marks the start of Childhood Cancer Awareness Month.

Cooper had not long turned 18 when his body finally failed him.  He was for all intents and purposes, still a child.

One by one, we saw Cooper’s hopes and dreams savagely torn away from him, despite the fact he clung onto them until the very end. The brightest of futures rewritten in the cruellest manner.

Tragically we now recognise Cooper was one of many.

More than 1,000 Australian children/adolescents will be diagnosed with cancer in 2023, & approx 5,600 will be undergoing active treatment for cancer.

Up to 20% will be diagnosed with sarcoma. 

2 out of 5 diagnosed will not survive and those who do may suffer long-term health issues as current therapies/treatment options can affect a child’s growing body, and cause severe disability.

Statistically, 1 in 5 will be diagnosed with a subsequent cancer within 10 years.

In 2022, the projected average years of life lost to sarcoma in Aus, (0-24 age group) was 2,510.  

2,510 years filled with the brightest futures, hopes and dreams – gone in the blink of an eye.

Hope for the future lies in research.


In May, a group of 12 highly recognisable Australians, most of whom had a very special personal connection to Cooper, joined us to highlight the devastation of sarcoma on our young. They spoke candidly about their childhoods and what led them to where they are today.  Their stories form a complete contrast with those of a young person diagnosed with sarcoma – uncertain future, dreams displaced, & wasted potential.

We are excited to share some very special snippets over the weeks ahead & ask that you give thought to the potential & opportunity lost to childhood cancer – in particular, sarcoma which hits our young disproportionately hard. 

Let’s work together and rewrite the narrative to ensure our children have the future always intended.

Don’t let sarcoma end the story …

July is Sarcoma Awareness Month


Sarcoma awareness isn’t limited to a single month or day of the year—it’s something we need to consider 365 days a year.

However, in July, we have an opportunity to bring sarcoma into the spotlight and increase awareness of its sinister nature and the challenges it poses.  A time to direct the spotlight on those impacted by a sarcoma diagnosis—those living with it, their families, carers, survivors, and those forever missed who no longer walk beside us.

This month, CRBF is focusing on our young. Sarcoma affects all ages, but its impact on the young is particularly harsh. Throughout July, we will shed light on the heart-breaking reality faced by young sarcoma patients, driven by alarming mortality rates that show no signs of abating.

Sarcoma, a cancer that can arise anywhere in the body, is often misdiagnosed—especially young people, where symptoms are mistakenly attributed to growing pains, sports injuries, or the anxieties of adolescence.

Joining with us this July will be ten prominent Australians who reflect on their journey from childhood to success in their respective fields, and their immense contributions to Australian society.

What significance do these stories have to sarcoma? They provide a poignant contrast to the experiences of young sarcoma patients who we will also hear from. Far too often, their hopes, dreams, and aspirations are abruptly taken away. Lives changed irreversibly, leaving behind untapped potential.

By listening to these inspiring insights, we hope you’ll take a moment to reflect on the immense losses suffered by our young people diagnosed with this cancer. Loss of childhood, freedom, identity, friendships, time, and tragically, life itself. Sarcoma can alter the story at a crucial stage of physical, emotional, cognitive, and social development, disrupting regular milestones, hindering the dreams of our young.

Together, we can bring hope, support, and a renewed sense of purpose to those impacted.

Let’s rewrite the narrative—don’t let sarcoma end the story.

#SarcomaAwarenessMonth #Notgivingin #Curesarcoma #RewriteTheNarrative

CRBF Mother’s Day Breakfast 2023

As the sun rose over Sydney Harbour, creating the most spectacular sight, the remarkable team at the Park Hyatt Sydney were hard at work setting the tone for another CRBF pre-Mother’s Day breakfast.  The Park Hyatt Sydney has supported the work of CRBF for many years, and we remain so very grateful to Christine Haddad, Mary-Ann Gichaga for overseeing yet another flawless event.

Floral arrangements generously supplied by The Lynch family, and The Little Fresh Group, crowned the superbly styled tables with cream roses and carefully chosen greenery crafted into bouquets in tall glass vases.

Bottles of Taylors sparkling wine lined marble plinths, and together with sage and lavender candles from Glasshouse, and chocolates from Lindt, formed the beautiful take home gift bags for our guests.

Cooper’s Sydney Grammar School friends, the incredible Jarrad Sapsford and Marc Chami  provided their very special brand of musical performances as the guests arrived, for the fifth year of this event.  I doubt we can ever thank these outstanding young men enough for doing what they do year after year, despite moving on with the fabulous lives that await them.

Melissa Hoyer was MC once more, and how fortunate are we that she was?  Melissa has put her hand up for several years now, to help us out in arguably one of the most pivotal roles of this event.  She is as professional as she is genuine – a rare commodity.  As an aside, it is always the sign of a consummate professional who can step up to the challenge despite the absence of their notes (in no way her doing).  We thank you from the bottom of our hearts Melissa for all you do for sarcoma in Australia.

Gretel Killeen, is a force of nature, and someone we regard very highly at CRBF.  Once more, we were so fortunate her intense professional schedule enabled us to have her take the stage with pre eminent immigration law specialist the truly inspiring Carina Ford whose body of work with challenging immigration cases speaks for itself.  Carina and Gretel spoke to our guests about a current case  she is handling for a young sarcoma family.  This case is emblematic of the special needs our patients and families face daily.  It also impresses the fact that there are layers of the unexpected in a sarcoma diagnosis.  We are deeply indebted to both Gretel and Carina for this beautifully structured, and extremely informative segment.

CRBF’s Mitchell Rice-Brading proved his adaptability by stepping up to cohost, and to bring levity to an otherwise very serious topic, in several roles throughout the morning.  This was despite seriously compromising his inheritance by his very humorous but deeply unfounded recounts of his and his little brother’s upbringing in front of a television watching The Bold and the Beautiful reruns with his mother…  Mitch is an integral part of our community at CRBF, and is proving repeatedly that psychology may not be his only calling.

Scientific power couple, Professor(s) David Thomas and Mandy Ballinger joined Mitch Rice-Brading for a “fireside chat” about the IL23 clinical trial preliminary results, and the remarkable findings from the ISKS (International Sarcoma Kindred Study).  They also spoke of the imminent hope for the future surrounding sarcoma proving once and for all, the dial is finally moving.  The Foundation’s association with Prof Thomas and Prof Ballinger spans back to when Cooper was treated by Prof Thomas in 2017.  Cooper went on record to articulate his confidence and appreciation in not only their work, but the great sense of empathy and humanity both Mandy and David display to those who cross their paths.

The entertainment for the morning was provided by the exceptional Carly-Ann Evans and the extraordinary Daniel Tambasco.  You could hear a pin drop when they performed.  The recitals of The Prayer, and Ave Maria, simply defied words.  Both performances were flawless and added dimensions to the event that cannot be adequately described. Please contact CRBF should you wish to engage the services of this highly professional and uber-talented duo, who selflessly lent their time and passion to this event.

This year, we highlighted an outstanding group of contributors who together have amassed over $600,000 over the past six months for sarcoma services in Australia.  GWS netball star Amy Parmenter and crowd favourite Molly Croft led the interview, outlining the remarkable work of The Tie Dye Project in raising $130,000 in a matter of months, and speaking as to why they do what they do – paying homage to not only Molly who is an osteosarcoma survivor, but also Amy’s mum Gillie who passed away in 2013.

We then heard from Rebecca Minty and her mother Mary Lou who redefine the word inspiring.  Rebecca lost her precious son Zac to sarcoma in May of 2022, is facing her first Mother’s Day without her son.  She and her family have created a lasting legacy to Zac with “Bricks and Smiles” which has been created in his memory.  It is a programme to provide Lego to all children undergoing treatment.  A significant portion of the $38,000 amassed was raised by Mary Lou with bi weekly cake stalls. Suffice to say this story warmed the hearts of all in the room.

The microphone was then handed to Patrick Nekkan from Swing for Sarcoma who recently lost his beautiful mum to sarcoma, and saw his best friend Ed Clark diagnosed with this cancer also.  Swing for sarcoma, including Tim Telan and Dr Simon Danieletto is an outstanding team of young men all with an unusual connection to sarcoma, who have raised extraordinary funding and plan to do it all again in November of 2023.  We are without words to thank them for their amazing contribution.

Next up were the team from Macquarie Bank.  Mark Yam, a dear friend of Cooper’s from his Sydney Grammar School days, headed the discussion, and joined by Maddie Waites – although it could have been Georgia as they are twins.  This trio assisted by Emma Pechan formed the committee for the Macquarie Bank trivia night, which was predicted to raise a very respectable $8000 yet the final figure was $173,000!  We thank this team of exceptionally passionate young individuals, together with Deputy Managing Director of the Macquarie Group, Greg Ward – a man with a deep personal connection to Cooper, for their immense support of this event.

Finally we heard from the boys from Poor Man’s Everest – the brainchild of the most incredible trio of young men, Lachie Mactier, Angus Joyce and Hunter Hordern.  This fundraiser was in honour of Jack Gibson, who was to also compete with the boys in the Noosa Triathlon.  Against the most unimaginable of odds, the Poor Man’s Everest team together with their magnificent support group of Jack’s close friends, Will Gyles, Emma Duncan, Hugh Jamieson, Shiv Shaw, Tom Molloy and Dylan Boakes competed in this gruelling event raising the outstanding amount for the Jack Gibson Patient and Family Support Programme.  It is important to point out Lachie ran a half marathon earlier in the year to add gravity to this fantastic fundraiser.

Finally, we heard from Suzie Carlon.  Suzie is Jack Gibson’s mother, and yesterday, faced her first Mother’s Day without Jack.  Suzie chose to focus on acknowledging those mothers who make the world a special place for those (mainly children) who are living with sarcoma. Suzie’s beautifully chosen words resonated deeply with all present in the room – not only those who personally recognise the pain she lives with daily.  Suzie’s words embodied courage and deep seated resilience. Despite the fact her heart is broken in a thousand pieces, her words comforted so many.  She reminded us all – we are never alone. We are each united by the unspeakable road we travel.  Suzie went on to read Jack’s extraordinary speech from December 2021, where he spoke of “hope”.  This speech was a moment that will always remain suspended in time to those fortunate enough to be present, and Suzie’s courage in delivering this speech once more, was a moment that every guest in the room yesterday, will never forget.

So with another Mother’s Day Breakfast done and dusted, we must finish by recognising those who make these events possible – our sponsors.

For the past five years, many of the following have supported sarcoma services in Australia, and we would ask in return, our community considering supporting them for their loyalty.

The Autore family and Autore Pearls

Ange Cattana, Justin Taylor, the Taylor family and Taylors Wines

Dr Warwick Nettle and Ms Nicole Eckels – Glasshouse Fragrances

The Lynch family, and The Little Fresh Group

The Somerton Group and the Dreverman family

Lindt Chocolates

Park Hyatt Sydney

Bells of Killcare

The Magiros Family and The Macleay Group

Phillip Fikkers and Macleay St Bistro

Zinc Restaurant Potts Point

Bistro Rex

The Butler, Potts Point

The Potts Point Bookshop

Qantas

Finally, we could not do what we do without you, our loyal supporters.  It truly takes a village….

 

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Double Donation April – June 2023


CRBF is thrilled to announce that for the months of April, May and June of 2023, all donations for sarcoma research made through CRBF, will be doubled, up to a staggering $200,000. 100% of funds will then be directed to an exciting & innovative sarcoma research programme to be announced very soon.
That’s right, every dollar you donate will be matched by a profoundly generous private donor, effectively doubling the impact of your contribution.
Sarcoma currently attracts less than 1% of government funding, and it is philanthropy that continues to ensure the dial is moving.

Every donation, large or small, can make a difference in the lives of those living with sarcoma. With this matching opportunity, your gift will go twice as far in helping CRBF achieve our mission.

Whether you’re a longtime supporter or just learning about our organisation, we invite you to join us in this exciting opportunity, and together we can help make the future brighter for those diagnosed with sarcoma.

IT for a Cause Charity Golf Day


IT for a Cause golf day raises $105,000…

A picture perfect day at the magnificently manicured course @StMichaelsgolf set the scene for the IT for a Cause annual golf day.

The CRBF team comprised of world leading paediatric transplant surgeon Professor Albert Shun, his colleague leading Australian paediatric oncologist and sarcoma specialist, Prof Geoff McCowage, a young man who is dear to CRBF hearts, Coops friend and NSW cricketer @Baxter_ Holt together CRBF Company Secretary, Colin Brading . Golf was however the winner on the day…

Outstanding leadership from David Abouhaidar, Jody King, Alana Hogan and the team at @SecureAgility who oversaw a huge undertaking for three very fortunate charities: @SaveOurSons Duchenne Foundation, @RMC_ Sydney and the Cooper Rice-Brading Foundation .

Our most sincere thanks go to the David, Jody, Alana and the Secure Agility team for this incredible opportunity. Thank you must also go to all sponsors, attendees and Simone, Jamie and the team from RMHC, and Ellie, Julie and the team from Save our Sons Duchenne Foundation.

Your support will make a profound difference to our work at CRBF with 100% of donations directed to patient support and high level research into sarcoma.

CRBF Support Kits for those living with sarcoma


When you are diagnosed with sarcoma, your world changes in the blink of an eye.  Life is suddenly filled with extreme angst and the unknown.

Our Patient Support Advocate, the late Jack Gibson knew this feeling all too well, and it was Jack who spent hours of his time thinking about those things that made a difference throughout his treatment.

With the exception of the rug he loved to take with him during his visits to hospital,(which we are yet to source) we have put together kits that reflect comfort, a little luxury and practicality.  Kits that provide momentary joy to those living with a sarcoma diagnosis.

Woolen beanies, lip balm by moogoo,  skin products crafted for those going through cancer treatment from Scout Cosmetics, exquisite product from Glasshouse Fragrances,  silk eye masks and sleepwear from Peter Alexander Sleepwear, The Tie Dye Project long and short sleeve apparel, silk/ satin pillow covers, are provided in the standard kit .

Kits are tailored to the needs of each patient, and we cater for all ages and gender.

We can only do this because of the exceptional generosity of the partners we have in place for this very important project.  Their participation and willingness to support our work has enabled this programme to expand exponentially over the past five years.

Suffice to say, this would not be possible without their support.

A life that once was, the love that always will be


22 January, 1999 – 24 August, 2017

The life that once was, and the love that will always be.

Always and forever…

Our family extends our heartfelt thanks to Professor Glenn Marshall AM, talented  artist, and eminent paediatric oncologist at the Children’s Hospital Randwick,  Director of the Kids Cancer Alliance, and Head of Molecular Carcinogenic Program and Translational Research at the CCIS for capturing Cooper as he would wish to be remembered on his 24th birthday.

This magnificent painting which forms part of Prof Marshalls series  “boy to man…” portrays Cooper as an 11 year old captaining the SEJCA representative cricket side, and in the foreground as a 16 year old playing T20 for the Sydney Grammar 1st X1 shortly before his sarcoma diagnosis. (Original photos attached)