Perspectives of the SCNC Role

The role of the Sarcoma Clinical Nurse Consultant is pivotal to not only the quality of patient care, but assists greatly in supporting and navigating the patient through one of the most savage cancer treatment regimes.

“Patients diagnosed with sarcoma experience complex treatment pathways and unmet needs. The Sarcoma Clinical Nurse Consultant position was recently established in Western Australia to improve the quality of patient care. As this role is new in Western Australia and nationally, research is required to understand the duties, benefits, and gaps of the position.” (Perspectives of the sarcoma clinical nurse consultant role: A qualitative study conducted by a stellar team in WA, Rhys Weaver, Moira O’Connor, Irene Ngune, Richard Carey-Smith, Jane Phillips and Georgia Halkett) thoroughly explores the requirement for this critical role within the sarcoma MDT.

Congratulations to the team , and to our WA counterparts, Sock it to Sarcoma! – for facilitating this much needed research.

https://www.sciencedirect.com/science/article/pii/S1322769620301657

Associate Professor Paul Craft, AM

Associate Professor Paul Craft has been acknowledged for his dedication and commitment to oncology and professional organisations, in the Australia Day Honours list, awarded a Member of the Order of Australia (AM).

Professor Craft has a special interest in sarcoma, and forms part of the ACT region’s Sarcoma Multidisciplinary Team.

Since 1988 Professor Craft  has contributed significantly to Australian medical committees, councils and organisations including the ACT Health Research Ethics Committee, ACT Cancer Council, Royal Australian College of Physicians, and the Clinical Oncology Society of Australia.

Today, we sadly farewelled (Dr) Matt Fisher at a beautiful service in Canberra. Matt tragically lost his life to sarcoma on January 8.

Professor Craft was Matt’s oncologist and there was never any doubt how highly Matt regarded this very special man.

Matt was a scientist and understood well the hard work, experience and dedication it takes to make a significant footprint in a gruelling speciality such as oncology.  

From all at the Cooper Rice-Brading Foundation and the sarcoma community, we extend our heartiest congratulations to Professor Craft, AM, and our deepest gratitude for the profound difference he makes in the lives of cancer patients.

Sony & Sydney Sixers “You Can Stay”

YOU CAN STAY is an initiative of the Sony Foundation, and provides emergency accommodation for rural teenagers with cancer, and their families, enabling them to travel to the city for life-saving cancer treatment.

The Sony Foundation provides this service at no cost.

Each year the Sydney Sixers join with the Sony Foundation to raise funding and awareness for this outstanding cause, and this year, CRBF Ambassador Jack Gibson, was interviewed with long time friend and team mate Hayden Kerr, together with Captain, Daniel Hughes to promote the game which took place on Saturday 16 January, 2021.

As a significant portion of these young patients are living with a sarcoma diagnosis, we extend our sincere gratitude to both the Sony Foundation and the Sydney Sixers for the work they have done and continue to do, in making the lives of young rural cancer patients and their families, just a little less stressful.

Vale Matt Fisher – An inspiration to so many

Vale Matt Fisher

24 July, 1981 – 08 January, 2020

It is with deep sadness we learned this morning, of the passing of Matthew (Matt) Fisher.

Matt was diagnosed with Rhabdomyosarcoma in March of 2020 and underwent one of the most gruelling of treatment regimes. His courage and resilience never waned for a moment. His selflessness knew no bounds.

Matt leaves behind his much-adored wife and his “rock”, Naomi, who walked every step of the way beside Matt, whilst juggling the demands of their two precious daughters, Vivienne and Sylvie aged four and one.

There were so many learnings from this young family whose perfect life literally crumbled before them at the hands of sarcoma. Humility and grace in the face of adversity which needed to be witnessed to truly understand, perseverance and determination day after day, despite very little positive news along the way, and a love story like no other which will last forever.

The support of this remarkable young family extended to mum Susan who left her home in Japan, during Covid, to ensure they were never alone, together with that of the extended family. Everyone knew their role, and they each stepped up to ensure Matt, Naomi and the children were shrouded in love.

Yesterday, as per Matt’s wishes, the Matthew Fisher Sarcoma Research Fund was announced. Matt was a scientist and knew the undisputed value scientific research plays in advancing sarcoma. Unsurprisingly, for those who knew Matt, he opted to ensure his legacy was to help those yet to be diagnosed.

To this beautiful family who tonight contemplate life without Matt, we send you love, strength and support, and remind each of you never walk this road alone.

Matt, wife Naomi and their daughters Sylvie and Vivienne

CRBF Memorial T20 Covid cancellation

It is with the deepest regret the decision has been made to cancel the 2021 Memorial T20 cricket match.

This event will be back bigger and better in 2022, in time to mark what would have been Cooper’s 23rd birthday.

Join us in taking a trip down memory lane, with the wonderful photos from last year’s event, captured by photographer Katie Hardyman, who donated her professional talent and time to CRBF, to ensure these very special moments were captured for posterity.

Memorial T20 cricket 2020

Powered by WordPress | Theme: Astrid by aThemes.