What we do…
CRBF is dedicated to significantly improving treatment options and survival outcomes for young sarcoma patients.
We do this in three important ways, by:
• Raising vital funds for critical and innovative clinical research;
• Providing practical and personal guidance to support sarcoma patients, and their families, throughout treatment; and
• Raising awareness among health professionals and the general public to promote early detection and diagnosis.
CRBF has an active Medical Advisory Board of four specialist sarcoma clinicians who identify the most promising and innovative sarcoma clinical research within Australia.
We recently announced in-principle agreement to partner with the Garvan Institute of Medical Research (GIMR) supporting a world-first, two year, IL-23 clinical study. CRBF has also set a target of raising and to ensure health care professionals are trained to recognise symptoms. Rapid and accurate diagnosis of sarcoma together with a multi-disciplinary approach to treatment of this aggressive cancer may result in significantly improve survival outcomes.
Our growing patient support programme headed by Jack Gibson, sarcoma survivor & CRBF Patient Support Advocate, Keith Cox OAM, a recognised Australian expert in nursing support for young cancer patients, together with Mitchell Rice-Brading, Patient Care co-ordinator, will provide practical and personal guidance to support patients upon diagnosis and throughout treatment.
Meet the team
Jack Gibson – Patient Advocate
I was diagnosed with osteosarcoma on 1st of February in 2017, not long after my twentieth birthday. My tumour was found by coincidence on an x-ray for an unrelated knee injury. Throughout the next seven months, I was treated at Chris O’Brien Lifehouse, undergoing surgery and continual chemotherapy. Fortunately, my treatment finished on 1st of September in the same year and over the next two or three months, normality returned to my life.
In September 2018, I was given an opportunity by the Cooper Rice-Brading Foundation to become involved with their mission to change the future for sarcoma patients. I am very familiar with the process of diagnosis and treatment for this disease, and these experiences provide me a chance to give a voice to the patients and their families who are going through the same process.
Thanks to Cooper’s incredibly brave efforts we now have a chance to increase awareness and accelerate the pursuit of a cure.
Mitchell Rice-Brading – Patient Care Co-ordinator
Mitch is Cooper’s much loved older brother, and he formed a critical part of Cooper’s team of palliative carers. His first hand experience with regards to the specific needs of young sarcoma patients is vast, comprehensive and very personal.
At 23, Mitch recently completed an undergraduate science degree, majoring in psychology at the University of Sydney and will be working through his Honours year in 2020, with a view to completing a Masters or PhD in Clinical Psychology.
Mitchell is working as a trained mentor with Camp Quality, and volunteers his time with CRBF, to assist young patients and their families with an array of practical matters they may experience throughout treatment, thus providing a solid platform in which to be heard.
Keith Cox – Medical Advisory Board/CRBF Director
Patient Support Medical Consultant
Keith was the Oncology/ Chemotherapy Nurse Practitioner at the Chris O’Brien Lifehouse until the end of 2017, after some 38 years in cancer nursing. He now remains involved in a consultant role.
Keith is a Senior Clinical Lecturer at the University of Sydney, and is an Accreditation Assessor for the Australian Nursing and Midwifery Accreditation Council (ANMAC)
As a Nurse Practitioner, Keith bore a greater responsibility than a regular nurse, prescribing medicine, ordering tests and screenings, and the referral of patients to other medical professionals.
Keith was awarded an Order of Australia Medal in the 2007 Queen’s Birthday honours list for his services to Cancer Nursing, his work with youth and his volunteer work.s