ANZSA webinars for the month of July

The Australia New Zealand Sarcoma Association webinar series 2020

July is global sarcoma awareness month, and the Australia New Zealand Sarcoma Association, the peak scientific body for the sarcoma community. has created a series of webinars, covering a broad range of topics tailored to sarcoma patients and families.

These informative webinars are a must for sarcoma patients and their families past and present.

To register for these free webinars press on the following links:

6 July | 2.30pm – Clinical Trials –Why I Should I Participate in One?

Registration link – https://register.gotowebinar.com/register/113786666940124428

https://www.facebook.com/events/649976632261568)

16 July | 12pm – Managing Practical Issues while Undergoing Sarcoma Treatment. 

Registration link – https://register.gotowebinar.com/register/4502867760231478540

https://www.facebook.com/events/263301371566637)

23 July | 12pm – Survivorship – Life After Sarcoma Treatment. 

Registration link –  https://register.gotowebinar.com/register/819712714390992140

Facebook event page link (share using CRBF Facebook) – https://www.facebook.com/events/1627055397467781)

 

 

Zero Childhood Cancer $67m boost


The innovative and highly successful Zero Childhood Cancer program (ZERO) has this week received $67 million collaborative funding from the Federal government and Minderoo Foundation, to provide all children and adolescents with cancer the greatest chance of survival.

ZERO has changed the way diagnosis and treatment occur for children with the most aggressive cancers or for those with relapsed cancers. New funding committed by the Commonwealth Minister for Health, the Hon Greg Hunt of $54.8million together with $12.2million from Andrew and Nicola Forrest’s Minderoo Foundation will ensure ZERO is expanded, and will eventually be offered to all children diagnosed with cancer by 2023.

Each year, almost 1000 children and young people are diagnosed with cancer around Australia, and is unfortunately still the most common cause of death from disease

https://www.health.gov.au/ministers/the-hon-greg-hunt-mp/media/67-million-for-personalised-treatments-for-every-child-with-cancer

NOTTCS/Sony join forces


On Friday the 21st February, a young 20 year old sarcoma patient underwent a life changing egg harvesting and cryogenic preservation at the Alexandria Day Hospital in Sydney, under the watchful eye of Professor William Ledger.  Whilst this may not seem remarkable to those who are fortunate enough not to have to explore such avenues, this young woman is representative of many young cancer patients who slip through the cracks prior to undergoing onerous chemotherapy and surgical regimes to treat their respective cancers.

This process is expensive and it is challenging at times for those who find themselves in need of  seeking fertility treatments, in order to have a child.  It can be argued those with cancer have already been through quite enough without the added burden of infertility.  More often than not the  financial strain of this process  becomes an enormous burden, preventing many from having children.  The emotional and psychological impact of infertility can be immense, and this can me magnified when the patient is young, and has suffered a cancer diagnosis.

This situation is about to change.  A national “pioneering service to transport, freeze and store reproductive tissue for young cancer patients” initiated  by the Sony Foundation stands to revolutionise this process.  “The service – the first of its kind in Australia – will enable medical professionals nationwide to offer free fertility-preserving treatment to youth cancer patients aged 13 – 30 years.”

A gap in the health system for young people with cancer, had been preventing access to affordable fertility preservation options, and this was identified by the Sony Foundation.  “Alarmingly, Currently, only 4 per cent of young women and 1 in 4 young men undergo fertility preservation before chemotherapy, despite research showing infertility is the number one issue that has an identified impact on a young person’s quality of life following cancer. ”

CEO of the Sony Foundation, Sophie Ryan  said: “Sony Foundation’s funding will ensure this innovative fertility service is available for all young people diagnosed with cancer.  No longer will young people miss out on this treatment due to barriers such as lack of access for regional patients, cost and time restrictions. But more importantly, providing access will give young people facing cancer hope and the opportunity to focus on  life after cancer.

The team at the National Ovarian and Testicular Tissue Transport and Cryopreservation Service (NOTTCS) led by Professor Kate Stern, has a demonstrated history of fertility preservation, egg and sperm freezing, counselling and support of patients affected by cancer and fertility issues. “This service will enable tissue to be collected, transported and cryopreserved in Melbourne from patients right around Australia. It will give access to state-of-the-art fertility preservation to young people who might have thought that it’s the end of the road for their fertility, said Professor Stern”.

The Sony Foundation’s mission is for 100% of young people who are diagnosed with cancer to be offered fertility preservation that’s free and easily accessible.

CRBF wish to extend our deepest gratitude to Professor William Ledger, Professor Kate Stern, Dr Henry Liberman, The Alexandria Day Surgery Hospital, Kerri and the staff at IVF Australia, Bondi, and Emma Pechey from the Sony Foundaiton.

For further information on the Nationals Ovarian and Testicular Tissue Transport Service:

Call: (03) 83453227

Email: NOTTCS@thewomens.org.au

IVF Australia https://www.ivf.com.au/clinics/bondi-junction-fertility-clinic

ACRF research grants 2019



We congratulate Professor Michelle Haber, Children’s Cancer Institute Sydney, as a deserving recipient of the 2019 ACRF annual grant for her ground breaking programme incorporating the liquid biopsy.

Reducing the devastating impact of cancer treatment on children 

The current precision medicine treatment recommendations for children are based on an invasive and often painful procedure – tissue biopsy.

The $3.5 Million grant will fund next-generation sequencing technology to develop highly sensitive and minimally-invasive tests for children with cancer- using blood and body fluid samples.

This technology has the potential to benefit paediatric sarcoma patients nationally, and CRBF will be partnering in this exciting initiative over a three year period, to provide a dedicated sarcoma researcher, to work in tandem with this initiative.  The programme is the work of Dr Emmy Fleuren, who has incepted the sarcoma specific Phosphoproteomic study, and will work in tandem with the work of Professor Haber, in the area of liquid biospsy.

 

Read more about the liquid biopsy programme

The ACRF Child Cancer Liquid Biopsy Program