YOU CAN STAY is an initiative of the Sony Foundation, and provides emergency accommodation for rural teenagers with cancer, and their families, enabling them to travel to the city for life-saving cancer treatment.
The Sony Foundation provides this service at no cost.
Each year the Sydney Sixers join with the Sony Foundation to raise funding and awareness for this outstanding cause, and this year, CRBF Ambassador Jack Gibson, was interviewed with long time friend and team mate Hayden Kerr, together with Captain, Daniel Hughes to promote the game which took place on Saturday 16 January, 2021.
As a significant portion of these young patients are living with a sarcoma diagnosis, we extend our sincere gratitude to both the Sony Foundation and the Sydney Sixers for the work they have done and continue to do, in making the lives of young rural cancer patients and their families, just a little less stressful.
It is with deep sadness we learned this morning, of the passing of Matthew (Matt) Fisher.
Matt was diagnosed with Rhabdomyosarcoma in March of 2020 and underwent one of the most gruelling of treatment regimes. His courage and resilience never waned for a moment. His selflessness knew no bounds.
Matt leaves behind his much-adored wife and his “rock”, Naomi, who walked every step of the way beside Matt, whilst juggling the demands of their two precious daughters, Vivienne and Sylvie aged four and one.
There were so many learnings from this young family whose perfect life literally crumbled before them at the hands of sarcoma. Humility and grace in the face of adversity which needed to be witnessed to truly understand, perseverance and determination day after day, despite very little positive news along the way, and a love story like no other which will last forever.
The support of this remarkable young family extended to mum Susan who left her home in Japan, during Covid, to ensure they were never alone, together with that of the extended family. Everyone knew their role, and they each stepped up to ensure Matt, Naomi and the children were shrouded in love.
Yesterday, as per Matt’s wishes, the Matthew Fisher Sarcoma Research Fund was announced. Matt was a scientist and knew the undisputed value scientific research plays in advancing sarcoma. Unsurprisingly, for those who knew Matt, he opted to ensure his legacy was to help those yet to be diagnosed.
To this beautiful family who tonight contemplate life without Matt, we send you love, strength and support, and remind each of you never walk this road alone.
It is with the deepest regret the decision has been made to cancel the 2021 Memorial T20 cricket match.
This event will be back bigger and better in 2022, in time to mark what would have been Cooper’s 23rd birthday.
Join us in taking a trip down memory lane, with the wonderful photos from last year’s event, captured by photographer Katie Hardyman, who donated her professional talent and time to CRBF, to ensure these very special moments were captured for posterity.
Ambassador Baxter Holt takes the field again tonight for the Sydney Thunder against the Melbourne Stars, in the national BBL T20 Series.
Baxter has returned to the field, and is at his brilliant best after a twelve month rehabilitation to overcome a serious back injury.
He is not only one of the serious rising stars in the game of cricket, but an ambassador for CRBF, he is always helping with both sarcoma awareness and lifting the spirits of sarcoma patients when called upon. He is also one of the kindest and most considerate young men you would walk the earth to meet.
We wish Baxter and the Sydney Thunder every success in his game tonight.
Congratulations to Vince Umbers, who completed a full 42.2km marathon on Saturday!
Vince ran this insane distance in honour of his dear friend, and CRBF Patient Advocate, Jack Gibson who was part of Vince’s support crew on the day.
On top of the rigorous training regime, Vince has been working overtime raising money, and has topped over $5000, all of which is heading straight to sarcoma research!
From all at CRBF, we would like to pass on our heartfelt thanks to Vince, for the hours of training and hard work that went into this event, to each of his outstanding support team on the day, and to the profound generosity of Vince’s supporters, for their donations.
All monies raised from Vince’s runs will go directly to the IL-23 sarcoma specific sub-study, at the Garvan Institute of Medical Research which is scheduled to commence early in 2021.
Monday 9 November, marked the launch of the National Oncology Alliance (NOA) Vision 20-30, with a three hour conference hosting major stakeholders, including hosting leading Australian oncologists and researchers, together with presentations from cancer patients and families.
It was three hours that provided hope for the future for those living with a cancer diagnosis, with a particular emphasis on those living with a rare cancer diagnosis. Vision 20-30 will place the magnifying glass on the current systems, and how they fit within the global context, with particular alignment to cell therapies, genomics and personalised therapeutics.
With support from the Minderoo Foundation, the Federal Government, and Rare Cancers Australia, Vision 20-30 will form the basis for advancing cancer in Australia.
A team of scientists led by Western Australian based scientist Dr. Emel Rothzerg – School of Biomedical Sciences at the University of The University of Western Australia, in Perth (Australia) and the Perron Institute for Neurological and Translational Science in Nedlands (Australia), reports an association between osteosarcoma and abnormal alternative splicing of the leptin receptor overlapping transcript (LEPROT).
Over 950 children and adolescents will be diagnosed with cancer each year in Australia.
One in five of these childhood cancers will be a sarcoma.
Each week, three children adolescents will die from cnacer.
Tow in five sarcoma patients will die from their disease. This increases if the cancer has spread upon diagnosis.
Childhood cancer survivors have a much higher risk of developing other malignancies later in life.
One in five sarcoma survivors will go on to develop a subsequent cancer or another sarcoma within ten years.
This month we shine the spotlight on the outstanding work of all cancer researchers, clinicians, dedicated nursing staff, treating hospitals and not for profits, whose focus is finding a cure through innovative clinical studies, improved standards of treatment and care, and funding research for childhood cancer.
It is also a time when we remember those children undergoing treatment, those yet to be diagnosed, and those who have tragically lost their lives to cancer in this country.
Sarcoma affects all ages, however it hits our young disproportionately hard.
As a dedicated sarcoma organisation, we wish to specifically highlight the outstanding work of Dr Emmy Fleuren, Senior Scientist, Zero Childhood Cancer Personalised Medicine Programme, Children’s Cancer Institute, whose research surrounding sarcoma specific high level tumour analysis stands to revolutionise the way we approach treatment for sarcoma in the future. Dr Fleuren joins her esteemed colleagues at the CCIA working tirelessly to advance a cure for all childhood cancers.
To hear more about Dr Fleuren’s remarkable Phosphoproteomics programme in our recent Let’s Talk About Sarcoma podcast series, click the link below.
We extend our heartfelt gratitude to all contributors working toward a cure for all childhood cancers.