September is Childhood Cancer Awareness Month.
The Current situation at a glance.
Over 950 children and adolescents will be diagnosed with cancer each year in Australia.
One in five of these childhood cancers will be a sarcoma.
Each week, three children adolescents will die from cnacer.
Tow in five sarcoma patients will die from their disease. This increases if the cancer has spread upon diagnosis.
Childhood cancer survivors have a much higher risk of developing other malignancies later in life.
One in five sarcoma survivors will go on to develop a subsequent cancer or another sarcoma within ten years.
This month we shine the spotlight on the outstanding work of all cancer researchers, clinicians, dedicated nursing staff, treating hospitals and not for profits, whose focus is finding a cure through innovative clinical studies, improved standards of treatment and care, and funding research for childhood cancer.
It is also a time when we remember those children undergoing treatment, those yet to be diagnosed, and those who have tragically lost their lives to cancer in this country.
Sarcoma affects all ages, however it hits our young disproportionately hard.
As a dedicated sarcoma organisation, we wish to specifically highlight the outstanding work of Dr Emmy Fleuren, Senior Scientist, Zero Childhood Cancer Personalised Medicine Programme, Children’s Cancer Institute, whose research surrounding sarcoma specific high level tumour analysis stands to revolutionise the way we approach treatment for sarcoma in the future. Dr Fleuren joins her esteemed colleagues at the CCIA working tirelessly to advance a cure for all childhood cancers.
To hear more about Dr Fleuren’s remarkable Phosphoproteomics programme in our recent Let’s Talk About Sarcoma podcast series, click the link below.
We extend our heartfelt gratitude to all contributors working toward a cure for all childhood cancers.
Press the link below to hear the full version of the 2GB interview with Ben Fordham and Wippa, who shine the spotlight on sarcoma, and the Let’s Talk Sarcoma podcast series.
Cancer Nurses Society of Australia are conducting a series of webinars for Adolescents and young adults living with cancer.
Tuesday 11 August: An introduction to cancer in the AYA population
Tuesday 8 September: Special considerations when working with AYAs with cancer
Tuesday 6 October: Discussing fertility, sexual health and other sensitive topics with AYAs with cancer. To register for these webinars, press the link below:
Perth based sarcoma not for profit, Sock it to Sarcoma has recently completed the fourth highly successful year of their “Shine a light” on sarcoma light show.
June 29 to July 5, marked Sarcoma Awareness Week in Western Australia, and specially chosen landmarks around the metropolitan areas and regional centres of WA landmarks were used to Shine a Light On Sarcoma. – by lighting up in the colours of Sock it to sarcoma (SITS!).
WA Sarcoma Awareness week each year sees Sock it to sarcoma! create a lasting community awareness for this sinister cancer, with this spectacular light show, and in doing so, potentially saving lives.
To learn more about the outstanding work being done by SITS! please visit their website at https://www.sockittosarcoma.org.au/
We are live!
Earlier this week, the CRBF #sarcomafootprint digital billboards launched at multiple sites in Brisbane, Melbourne, Gold Coast, and Sydney!
We have taken our awareness campaign, during the heart of sarcoma awareness month, to the streets of key Australian cities, thanks to the generosity of @QMS_media who donated this campaign in loving memory of Daniel Allchin, who lost his life to sarcoma in 2018.
We extend our gratitude to the remarkable team at QMS media, the wonderful Victoria Ellison, and the inspiring Allchin family, who each made this campaign possible. Also, huge thanks to Jordan Laing for putting the #sarcomafootprint campaign together, and to @jludemanncreative for designing the billboards.
Keep your eyes peeled when you’re driving around!
Sarcoma Awareness Month
CRBF Press Release
July is Sarcoma Awareness Month, and the Cooper Rice-Brading Foundation (CRBF) has once again joined the global initiative to raise awareness of sarcoma, a cancer that sadly shatters the lives of far too many patients and families.
Each year, CRBF funds innovative research leading to a cure, and supports sarcoma patients from diagnosis throughout treatment and beyond. Throughout July, the Foundation’s efforts to spread sarcoma awareness are accelerated.
Sarcoma can affect all ages, but hits our young disproportionately hard. Of all childhood cancers, one in five is a sarcoma, and survival outcomes remain amongst the worst of all childhood cancers. Yet, sarcoma receives less than one per cent of total cancer funding.
This July, the Foundation is calling upon anyone impacted by sarcoma, to upload the #sarcomafootprint image to social media, which can be found on the CRBF Instagram (@crbfoundation) and Facebook pages, to highlight sarcoma’s devastating footprint.
With each step forward, with time, and with carefully targeted funding and research, we can all fight sarcoma together and help to find a cure.
CRBF Chairman, Robert Beech-Jones said the Foundation is hoping to spread an important message during Sarcoma Awareness Month.
“It’s been an incredibly tough start to the year for all Australians, however, for some it’s been made even worse with the sarcoma diagnosis of a family member or friend. or the devastating passing of a loved one,” Beech-Jones said.
“Despite the outstanding efforts of many in the sarcoma community, survival outcomes and treatment options have not changed significantly in almost 40 years, while other cancers are making important inroads into finding a cure.
“Through more funding and research, we’re aiming to facilitate an eventual cure for sarcoma and to stop lives being cut short.
“We understand how difficult 2020 has been for most, but unfortunately cancer doesn’t slow during times of hardship, and each day more young people are being diagnosed with sarcoma.
“We’re hoping we can continue to help raise awareness of sarcoma, and to ensure more people are informed of its prevalence and severity.
“Please join us in using #sarcomafootprint this July by uploading a photo of the CRBF footprint, if you or someone you know has been impacted by sarcoma.”
For those living in Sydney, Melbourne, Adelaide, Brisbane and Gold Coast, keep an eye out for CRBF digital billboards on major roads promoting sarcoma awareness messages from July 6. The billboards were kindly donated to CRBF by QMS media, on behalf of Daniel’s Race for a Cure conducted by the Alchin family, in memory of Daniel Alchin.
To launch Global Sarcoma Awareness Month, CRBF, together with their West Australian counterpart, Sock it to Sarcoma!, have worked collaboratively to produce the podcast series: Let’s Talk About Sarcoma. Hosted by Cathrine Mahoney and Michael ‘Wippa’ Wipfli, the podcast will be available through Apple podcasts, or at crbf.org.au, with episodes set to be released on July 3. This series will cover the expected, the unexpected and everything in between, of a sarcoma diagnosis. Patients, families, clinicians and researchers will provide the raw and honest narrative.
Cooper Rice-Brading sadly lost his brave fight against bone cancer in 2017, just 18 months after being diagnosed with osteosarcoma.
Prior to his passing, Cooper incepted the Cooper Rice-Brading Foundation to raise much needed funding for research into sarcoma, with the vision of improved survival outcomes and treatment options for all sarcoma patients.
The Australia New Zealand Sarcoma Association webinar series 2020
July is global sarcoma awareness month, and the Australia New Zealand Sarcoma Association, the peak scientific body for the sarcoma community. has created a series of webinars, covering a broad range of topics tailored to sarcoma patients and families.
These informative webinars are a must for sarcoma patients and their families past and present.
To register for these free webinars press on the following links:
6 July | 2.30pm – Clinical Trials –Why I Should I Participate in One?
Registration link – https://register.gotowebinar.com/register/113786666940124428
16 July | 12pm – Managing Practical Issues while Undergoing Sarcoma Treatment.
Registration link – https://register.gotowebinar.com/register/4502867760231478540
23 July | 12pm – Survivorship – Life After Sarcoma Treatment.
Registration link – https://register.gotowebinar.com/register/819712714390992140
Facebook event page link (share using CRBF Facebook) – https://www.facebook.com/events/1627055397467781)